Swallow Study & Taping

The speech therapist had requested a swallow study be done and the surgeons requested that we see a pediatric dentist to start trying to pull her lip together before the surgery. We went back to San Antonio and had the swallow study done and she passed everything. They declared that she wasn't aspirating as long as we fed her a certain way. We were thankful for the good news but watching her go through the tests was heart breaking. She was so tiny laying on the big table and every cry she made just made it harder to watch. After the study we went to the pediatric dentist (Dr. Xu) and she showed us how to use the dyna cleft tape to help pull the muscles together. Also she told us that we needed to get a mold made of her mouth so they could make her a mouthpiece to wear to also help. She did fine with the taping and we could start to see a difference. We went back to get the mouthpiece made a week later. When they were taking the mold Kenley made the most pitiful cries I have ever heard and it was all I could to not breakdown and cry right there. To make the story short she didn't tolerate the mouthpiece but we got it trimmed and we are going to try it again. She saw the team of specialists the first week of June and they want to see her the first of August to see if she's ready for surgery. So for now we are just working on making sure she keeps gaining weight, trying the mouthpiece again, doing the dyna cleft taping, and giving her as much love as possible!